- I have been put in a side room and am being kept in isolation for infection control. Although I know and understand the reasons why people entering the room have to where a gown and gloves, as a patient, it does make you feel like your a bit of an outcast or someone to be held at arms length.
- Also, using jargon to wiggle your way out of a question does not go down well, especially if you actually understand the jargon! If you don't know go find out and then don't "forget" to come back.
- The nurses are amazing, bake them cookies!
Sunday, 27 January 2013
Back here again?
This is an ammonite fossil. What I find interesting about it is the intricate spiral pattern. I don't like going round in circles. A lot of the time I feel like I've already faced a particular trial and now I'm back here again. This picture only shows you a lump of dark grey rock, but what I can see when I hold it is that with every step up, with every rotation, round the fossil it shines and glimmers a little different each time. Maybe the same can be said for the events of this life - even though I have been here before there will be something new, something beautiful, to see amongst the dark grey rock.
Time for some catch up. I am currently writing this blog in hospital and I have been here since Monday. Two weeks ago I was told that I have an aggressive form of leukaemia (acute myeloid leukaemia - for those who are interested in terminology) that has been cause by the chemotherapy treatment I had 3 years ago for the Hodgkin Lymphoma. The doctors have said that this is incredibly rare for this to have happened and now I have to stay in hospital for about five weeks at a time getting intensive chemo to cure the cancer that was caused by the chemo - go figure.
I have had one of the worst weeks of my life this week. I had a very rare reaction to one of the chemo drugs which made my brain swell (encephalitis) . I was severely ill for four days and today is the first day that I have any strength. Yesterday, it got to the point that, if death were an option, I would have taken it gladly - and I do not say that light heartedly. I just couldn't go on. But, with some calming words from the docs, encouragement from friends and a shed load of prayer, I did continue to take the treatment and I feel much better today.
I spoke to a Chaplain today, we shall call him Charlie. We had communion (those pocket communion things are amazing!) and a really interesting chat. I guess what I learned today was that each trial or difficulty I have faced has built up my faith so that I can look back and know that if God has got me through A B and C, which have increased in intensity, in the past then He will get me through X Y and Z in the future. But, it does make me wonder if this could be building up to a bigger test of faith!
From Me to You: Medics make the Worst Patients.
I have decided that it might be useful to reflect (how we dislike that word) on what it is like to be a patient for the benefit of us all; here are my initial observations.
That's all for now folks, signing out.